Why do I want to write, you may ask as you come across this blog.
I have had many challenges in my life, good and bad, lived through craziness and still am kicking.
I was born in the 90s. My mother, from the start was never in my life.
She was a hardcore drug addict and prostitute. She only had two things on her mind money and drugs. When I was born a friend of my mother’s called my grandma, my mother’s mom, and told her she couldn’t keep on taking care of me, Judith, my mother was in jail and this friend had 5 other kids to take care of.
Immediately, my grandma came down from New Jersey and picked me up and took me back with her, I was only a few months old at this time. A year later, the condo association my grandma was living in told her she had to move because no children were allowed.
Grandma had a boyfriend named Tom at that time in Las Vegas and he invited us to live with him. Off we went to Las Vegas Nevada and my grandma fell in love with the city (God knows why!)
She got herself involved with a local church and started to look for housing, not shore why she didn’t stay with Tom or what not, however, she didn’t and moved into an apartment and started to build a life in Las Vegas with me.
Around the age of two, grandma noticed my eyes looked weird and at once, took me to an eye doctor. She said my pupils were enlarged and just did not look right and she was correct. I was diagnosed with retinitis pigmentosa.
Here is a little information about RP from the National Eye Institute
“Retinitis pigmentosa (RP) is a group of rare eye diseases that affect the retina (the light-sensitive layer of tissue in the back of the eye). RP makes cells in the retina break down slowly over time, causing vision loss.
RP is a genetic disease that people are born with. Symptoms usually start in childhood, and most people eventually lose most of their sight.
There’s no cure for RP. But vision aids and rehabilitation (training) programs can help people with RP make the most of their vision.”
https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/retinitis-pigmentosa
Off I went for testing for about a year. Doing various exams and such, at the end of it all, it was decided nothing could be done and just cope with it. We had no idea where it came from, not on my mother’s side of the family and we do not know my father, so resigned to my diagnosis, my grandma pushed on with our lives. Since she was retired and I was not ready for school, off we went on a road trip across the USA.
The Dappled Odysseys 